The Ciliopathy Alliance is a collaborative network aimed at improving the lives of those affected by ciliopathies, which are conditions caused by dysfunctional or defective cilia. Bringing together patient support groups, researchers, doctors, and health professionals, the alliance focuses on a range of genetic conditions that can lead to chronic disabilities and life-threatening diseases. With a vision to enhance the quality of life for individuals living with ciliopathy syndromes, the Alliance encourages engagement and participation in its mission.